So I had my surgery - although really it was more of a procedure because it was crazy quick so I don'tknow why they consider it ambulatory surgery other than the fact that they want more money (by they I mean my blood sucking insurance company).
Anyways My uterus is V or heart shaped. Not great news but not horrible news either. This can mean one of two things the first (and in my opinion better of the two) is that I could have a septum in my uterus. Essentially all that means is that there is tissue separating my uterus. Apparently (from my research) all women have a septum in their uterus when they are developing before they are born and sometimes that septum doesn't dissolve as it is supposed to. So the doctor said in this case if the baby is implanting on this "tissue" it will not survive. This is an easy fix they just do a surgery and cut that tissue out therefore hopefully solving the problem :) I'm hoping that this is my issue!
Secondly is the worse news in my opinion. That would be that I have a bicornuate uterus. (According to that link apparently bicornuate is NOT usually associated with recurrent miscarriage but septate uterus - like I was talking about above - is associated with recurrent miscarriages.) If this is the case it looks the same the only difference is that the separation in this case is muscle not tissue. Therefore they would do nothing. I asked the doctor if I was screwed if I had a bicornuate uterus (yes LOL in that exact wording to a doctor haha) and he told me no that with women who have a bicornuate uterus they see them get further along with each pregnancy as the muscle learns to stretch more each time. Well that did not make ME feel better! I was 6 weeks or 20 with Riley and 10 with Peyton at that rate I would have to have a lot more lost children before one was viable :*(
Either way I have to get either Laproscopis surgery done or an MRI to diagnose whether it is tissue or muscle. I told him the MRI is obviously less invasive so that seems more logical to me. This was not my normal specialist though so on Monday when I go in for an ultrasound (again I have NO idea why I am doing that) I will ask my doctor about the difference between the two. If he tells me that there is a chance that the MRI may not find anything and that a lap makes more sense then I will do that I know that it is a very minimally invasive surgery. I will see what he thinks is the best plan. He does procedures like this all the time so I trust his judgment.
I don't know what to think honestly. The research I have done (i.e. the links above - I don't research TOO much it freaks me out and does no good) seems to point to septum because bicornuate isn't linked to recurrent miscarriages (or even first trimester miscarriages for that matter) whereas a septum is a large cause for miscarriage. Needless to say I think the septum sounds less terrifying and I am hoping that is my problem.
The negative there is that given we found issues no TTC this month as I hoped :*( and it will take a bit to get a ton of signatures so that the blood suckers cover the MRI (if that is the way the doc thinks I should go). Then he said if it's bicornuate then they just say carry on and there's nothing they do. It would mean high risk pregnancy in most cases from what I can tell. My obgyn seems pretty laid back about bicornuate uterus but it doesn't seem like something to be laid back about honestly. If it's a septum then I guess I have to go back on birth control (UGH!) to control my uterine lining from getting to thick. I have no idea HOW long I would have to be on the pill before they would do that surgery.
I realize that I have no control over that and whatever the issue with my uterus that issue is present and won't change but I am HOPING for a septum as weird as that sounds LOL seems to be the lesser of two evils.
I'll talk to the doc more on Monday and write more when I know more :)
Thanks for your prayers - it was pretty much pain free :)
ten years
4 years ago
don't know how i missed your blog. glad i found it though. i look forward to following you on your journey and cheering you on. i hope that you get the news that you want. and i'll be keeping you in my thoughts and prayers
ReplyDeleteJess,
ReplyDeleteThank you for the update. You have been on my mind all day. I am glad the surgery went well and gave you some answers. I am praying for the septum too. I agree that it sounds like it would be a pretty easy fix and it would mean that you can have a healthy rainbow after they fix it. It does not sound like the issue is a bicornuate uterus from what you explained. I pray that it is not and that you will be able to TTC in the near future. I am praying for that healthy rainbow baby for you. You are in my thoughts and prayers.
Love,
Mary
Darn it! I was really hoping they wouldn't find anything!! Praying for the lesser of two evils too and a quick fix so you can TTC soon. All in His timing though - which we know is perfect - so try to rest in that my friend (((hugz)))
ReplyDeleteJamie
Oh good. You have answers now. Hoping that whatever needs to be done is done quick so you can physically heal from it and then start trying again!
ReplyDeleteGlad the "procedure" wasn't too awful and I hope you get more answers next week.
ReplyDeletePraying the fix is simple and I'm glad the procedure wasn't too bad. Thinking about you ....
ReplyDeleteBack in 1985 I was diagnosed with a bicornuate uterus after many miscarriages..I had uterine reconstruction where they surgically removed the septum and within the healing amount of time it took 2 cycles of clomid and i had a healthy pregnancy..I delivered a 6.9 oz boy at 38 weeks via c-sections and 20 months later at 38 weeks a healthy 7lb 2 oz girl...The surgery was a total success. dont give up :-)
ReplyDeleteJust starting to read your blog and wanted to say hello. I hope you have a peaceful weekend.
ReplyDeleteHope yyou get the 'easy' fix and that you're not too stressed out - this sort of stuff can be really draining!
ReplyDeleteAlthough it might be a difficult journey, I am so glad that you have some possible answers and that your doctor is so supportive. I am sending you prayers and hopeful wishes <3
ReplyDeleteI'm glad you have some answers & will be praying for your peace of mind & that God will give you favorable results. At least as favorable as we can get with this =)
ReplyDeleteHugs to you, keep your eyes on HIM.
I'm glad the procedure went well and you have some possible answers now.
ReplyDeleteI have several friends in my bereavement group that had septums removed so if you want their emails send me a message. One is 22+ weeks pregnant now, but she had a TAC b/c of other cervical issues. Hope you get some answers soon.
ReplyDelete(((hugs)))) I finally found the post!! I hope they can figure this out for you. I know 'google' can be the worst for you sometimes, but googles is actually what may have saved my life and future babies too. i googled every word in alyssa's autopsy when they said nothing was wrong and found that EVERYTHING leaded up to MTHFR and so I had way more knowledge about what i was faced with and was able to ask questions better and get the right drs to help me. I dont suggest going into a forum and asking them. but instead googling about the results you got themselves and possible procedures there are to correct them, and if this dr is not familiar or comfortable with that then you have a chance to find the BEST one, that wont cause more of your babies to leave you too soon. TTC after loss is SO scary and when you know there are things that are causing them, its even more scarier unless you have a plan...A PLAN can make things a lot smoother and i wish you both the best of luck xoxoxo
ReplyDeleteI am hoping that you continue to find answers and that it turns out to be the the lesser of the two evils...although I am sorry that there has to be any evil at all. :( And I hope that you can get back on the TTC wagon soon -- I know it sucks to feel like you are in limbo. Thinking of you...(((hugs)))
ReplyDelete